My Story: A Photographic Essay on Life with Multiple Sclerosis (Paperback) - click on "Best Price" to buy for $11.85
REVIEW: Ameila Davis is a documentary photographer, diagnosed with MS in 1998.
Though titled "My Story", this book is really "their stories". In this book, she uses her trained eye to illustrate 32 essays personally portraying the lives of men and women with Multiple Sclerosis.
They range from 17 to 70, across a spectrum of ethnicities, genders, occupations, socio-economic backgrounds and family circumstances.
Through her book, Amelia captures the unique approach each person has used to frame their chronic disease with, not only a positive attitude, but with a positive approach to life.
She also includes the caregivers ... those frequently forgotten in the struggle with MS and all chronic disease.
Her essays help others to see, through the stories of real people, the different possible treatments and therapies and the techniques for coping (such as exercise, yoga, creative activities and competitive sports).
Her photographs capture the people behind these essays, putting a real face, a personal face, on what is often discussed in impersonal, clinical terms. You don't just read their story; you are drawn into a human connection with them.
This is a book to buy and read. And it is also a book to buy and display, a coffee table book.
Discussing MS with friends and family can be difficult. Chronic disease can create a "distance", a separation. This book can help to bridge that gap.
As someone picks up this book to browse and becomes captured by the photographs, it can crack the door to an open conversation about MS, about what it means and about how lives continue after diagnosis.